-Jeremy
Our 2-year old son Tzadok was diagnosed with a brain cyst in the pituitary gland in June of 2014. We've set-up this blog as a way to keep friends and family informed of his daily progress and struggles. It's also our desire that this blog blesses other parents with knowledge, hope, and encouragement if they find themselves in a similar situation.
Friday, August 22, 2014
The Waiting Game
We know that everyone is very concerned for Tzadok and that everyone is needing an update, so here is where we stand today. Rachel and I have tried to seek out every different treatment option because we feel that Tzadok deserves the best care for the tumor and he needs to have the best possible quality of life after the treatments are completed. All this has led to a period of time we've come to call the "waiting game." We know that it was the Father's will to reveal this cyst to us, but we haven't been very clear on when to act on this information or to which path of treatment is the right path; however, we now feel in our spirit that seeking treatment with St. Jude is the best overall option for Tzadok. With that being said, we have been trying to contact the neurosurgeon's nurse to schedule the brain surgery for several days, but we have not been able to reach her thus far, which is mainly because we cannot contact her directly so we are relying on messages from other nurses to reach her. One thing, however, is for sure. The surgery will be scheduled for sometime in beginning to mid-September. I'm sure everyone is curious what the days, weeks, and months ahead of Tzadok will look like, so here's a brief list of what we know about the immediate future. First, Tzadok will go to St. Jude for brain surgery. Then he will stay in the hospital for seven to ten days, in recovery. After that time, we can come home for ten days and then we will have to return to St. Jude for two weeks of solid testing and research. Immediately following this two week period Rachel, Tzadok, and the baby will fly down to Jacksonville for a few days of preparation, and then they will come home for another ten day period, while the doctors prepare the machines. Finally, we will go as a family to Jacksonville and begin Tzadok's treatment, which will last for six to eight weeks. This is our immediate future and all prayer's for successful surgery and treatment are our top priority. However, our living arrangements have not changed and we are still very concerned and stressed about how we are to care for a recovering son in the midst of all this turmoil. For now it seems that we will have to be content with waiting for the Father's provision in this area, and as always please keep Tzadok in your prayers he is a precious boy facing a giant mountain.
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Praying!! My husband had a brain tumor when he was 8.. It was the size of a grapefruit.. He had most of it removed but he is alive.. He had to have his pituitary gland removed also. We will pray for your son and for the doctors and nurses that will be helping him. God is able!!
ReplyDeleteThank you Jenny for your encouraging words. We are trusting in our able God. Please keep praying for a mighty outcome.
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